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    {
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    {
            
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      "description": "Data on physical wellbeing.  \r\n\r\n  
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      "description": "Data on physical wellbeing.  \r\n\r\n  
            
9
\r\n\r\nNative Hawaiian health originates from a harmonious 
9
\r\n\r\nNative Hawaiian health originates from a harmonious 
            
10
relationship between one\u2019s na\u02bbau (mind), kino (body), and 
10
relationship between one\u2019s na\u02bbau (mind), kino (body), and 
            
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\u2018uhane (spirit).  Understood through the lens of the social, 
11
\u2018uhane (spirit).  Understood through the lens of the social, 
            
12
historical, cultural, political, and environmental determinants of 
12
historical, cultural, political, and environmental determinants of 
            
13
health, physical wellbeing data can include rates of longevity, 
13
health, physical wellbeing data can include rates of longevity, 
            
14
disease, active lifestyles, and access to quality health care and 
14
disease, active lifestyles, and access to quality health care and 
            
15
providers across the entire lifespan. \r\n\r\n  \r\n\r\n\u00b7         
15
providers across the entire lifespan. \r\n\r\n  \r\n\r\n\u00b7         
            
16
Lifestyle\u202f  \r\n\r\n\u00b7         Access to healthy foods\u202f  
16
Lifestyle\u202f  \r\n\r\n\u00b7         Access to healthy foods\u202f  
            
17
\r\n\r\n\u00b7         Quality healthcare\u202f  \r\n\r\n\u00b7         
17
\r\n\r\n\u00b7         Quality healthcare\u202f  \r\n\r\n\u00b7         
            
18
Health and disease  \r\n\r\n\u00b7         Healthcare workforce  
18
Health and disease  \r\n\r\n\u00b7         Healthcare workforce  
            
19
\r\n\r\n\u00b7         Traditional healers ",
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\r\n\r\n\u00b7         Traditional healers ",
            
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      "display_name": "Ola Kino",
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      "display_name": "Ola Kino",
            
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      "image_display_url": 
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ataportal.com/uploads/group/2021-08-27-225536.770470olakinobrown.png",
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ataportal.com/uploads/group/2021-08-27-225536.770470olakinobrown.png",
            
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      "name": "ola-kino",
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      "name": "ola-kino",
            
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      "title": "Ola Kino"
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      "title": "Ola Kino"
            
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    }
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    }
            
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  "id": "b5833020-1111-4b5d-ba9e-a55250cdb122",
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  "id": "b5833020-1111-4b5d-ba9e-a55250cdb122",
            
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  "isopen": true,
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  "isopen": true,
            
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  "license_id": "cc-by",
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  "license_id": "cc-by",
            
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  "license_title": "Creative Commons Attribution",
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  "license_title": "Creative Commons Attribution",
            
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  "license_url": "http://www.opendefinition.org/licenses/cc-by",
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  "license_url": "http://www.opendefinition.org/licenses/cc-by",
            
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  "maintainer": "U.S. Department of Health and Human Services 
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  "maintainer": "U.S. Department of Health and Human Services 
            
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(DHHS)/Health Resources & Services Administration (HRSA)",
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(DHHS)/Health Resources & Services Administration (HRSA)",
            
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  "maintainer_email": "",
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  "maintainer_email": "",
            
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  "metadata_created": "2019-11-27T21:17:27.634845",
            
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  "metadata_modified": "2024-02-20T22:26:55.944867",
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  "metadata_modified": "2024-02-20T22:28:19.329991",
            
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  "name": "survey-of-pathways-to-diagnosis-and-services-spds",
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  "name": "survey-of-pathways-to-diagnosis-and-services-spds",
            
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  "notes": "The SPDS was conducted in 2011 as a follow-up to the 
39
  "notes": "The SPDS was conducted in 2011 as a follow-up to the 
            
40
2009/10 National Survey of Children with Special Health Care Needs 
40
2009/10 National Survey of Children with Special Health Care Needs 
            
41
(NS-CSHCN). Adding to the rich information available in the NS-CSHCN, 
41
(NS-CSHCN). Adding to the rich information available in the NS-CSHCN, 
            
42
the Pathways survey took a closer look at the emergence of symptoms 
42
the Pathways survey took a closer look at the emergence of symptoms 
            
43
and diagnosis, and the use of medication, health care and education 
43
and diagnosis, and the use of medication, health care and education 
            
44
services. The Pathways survey provides information about parental 
44
services. The Pathways survey provides information about parental 
            
45
concerns and perceptions, the process by which the child was 
45
concerns and perceptions, the process by which the child was 
            
46
diagnosed, access to care, service needs and use, functional 
46
diagnosed, access to care, service needs and use, functional 
            
47
limitations, and strengths and difficulties for children with ASD, DD 
47
limitations, and strengths and difficulties for children with ASD, DD 
            
48
or ID. Pathways was a nationally representative survey of children 
48
or ID. Pathways was a nationally representative survey of children 
            
49
with special health care needs age 6-17 years who were identified by 
49
with special health care needs age 6-17 years who were identified by 
            
50
the 2009/10 NS-CSHCN as ever being diagnosed with autism spectrum 
50
the 2009/10 NS-CSHCN as ever being diagnosed with autism spectrum 
            
51
disorder (ASD), developmental delay (DD), or intellectual disability 
51
disorder (ASD), developmental delay (DD), or intellectual disability 
            
52
(ID).\r\n\r\nAlthough Native Hawaiian is a response option for the 
52
(ID).\r\n\r\nAlthough Native Hawaiian is a response option for the 
            
53
Race variable, the online data query tool collapses this value under 
53
Race variable, the online data query tool collapses this value under 
            
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\"other\". If any users request a download of the datafile, please let 
54
\"other\". If any users request a download of the datafile, please let 
            
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us know how Race is represented in that resource so we can update this 
55
us know how Race is represented in that resource so we can update this 
            
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information. ",
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information. ",
            
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    "approval_status": "approved",
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    "approval_status": "approved",
            
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    "created": "2019-08-28T21:48:31.802843",
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    "created": "2019-08-28T21:48:31.802843",
            
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    "description": "This Portal is a collaboration of 
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    "description": "This Portal is a collaboration of 
            
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Lili\u02bbuokalani Trust, Kamehameha Schools, and OHA.\r\n\r\nPlease 
63
Lili\u02bbuokalani Trust, Kamehameha Schools, and OHA.\r\n\r\nPlease 
            
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see the \"About\" page for more information.",
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see the \"About\" page for more information.",
            
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    "title": "Native Hawaiian Data Portal",
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      "description": "Users can request data at 
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      "description": "Users can request data at 
            
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ocs/default-source/drc/drc-dataset-application-08-17-16.pdf?sfvrsn=4",
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https://www.cdc.gov/nchs/slaits/spds.htm",
            
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      "description": "Link above is for the codebook for the 
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      "description": "Link above is for the codebook for the 
            
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survey.\r\n\r\nAdditional resources for SPDS data analysis are 
107
survey.\r\n\r\nAdditional resources for SPDS data analysis are 
            
109
available at 
108
available at 
            
110
=site-search&searchQuery=pathways&wordsMode=AllWords\r\n\r\n\r\n\r\n",
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=site-search&searchQuery=pathways&wordsMode=AllWords\r\n\r\n\r\n\r\n",
            
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      "url": 
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      "url": 
            
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t-document-library/codebook_2011-pathways-spss.pdf?sfvrsn=bc47c444_2",
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t-document-library/codebook_2011-pathways-spss.pdf?sfvrsn=bc47c444_2",
            
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      "description": "Data were collected via a telephone survey and a 
            
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follow-up self-administered survey. \r\n\r\nSurveys are also available 
133
follow-up self-administered survey. \r\n\r\nSurveys are also available 
            
135
at this 
134
at this 
            
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hmi.org/data-in-action/pathways/resources-for-pathways-data-analysis",
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hmi.org/data-in-action/pathways/resources-for-pathways-data-analysis",
            
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      "id": "d7d670aa-fb15-4995-93aa-d4ab1d01d964",
            
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      "name": "Reports",
179
      "name": "Reports",
            
181
      "state": "active",
180
      "state": "active",
            
182
      "vocabulary_id": null
181
      "vocabulary_id": null
            
183
    },
182
    },
            
184
    {
183
    {
            
185
      "display_name": "Restricted-Available on Request",
184
      "display_name": "Restricted-Available on Request",
            
186
      "id": "cba9208a-9f6a-4c45-abaf-37f7bc7abeaf",
185
      "id": "cba9208a-9f6a-4c45-abaf-37f7bc7abeaf",
            
187
      "name": "Restricted-Available on Request",
186
      "name": "Restricted-Available on Request",
            
188
      "state": "active",
187
      "state": "active",
            
189
      "vocabulary_id": null
188
      "vocabulary_id": null
            
190
    }
189
    }
            
191
  ],
190
  ],
            
192
  "title": "Survey of Pathways to Diagnosis and Services (SPDS)",
191
  "title": "Survey of Pathways to Diagnosis and Services (SPDS)",
            
193
  "type": "dataset",
192
  "type": "dataset",
            
194
  "url": "https://www.cdc.gov/nchs/slaits/spds.htm",
193
  "url": "https://www.cdc.gov/nchs/slaits/spds.htm",
            
195
  "version": ""
194
  "version": ""
            
196
}
195
}